Posted November 08, 2018 12:08:24 A mother of a baby born with microcephalic head and neck was given a heart condition diagnosis this week and her son has a respiratory condition too.
A Queensland health worker and nurse who cared for the baby and their three-year-old son at their home in Brisbane’s west have been charged with failing to provide the required care and has been remanded in custody to face trial.
The baby was born with a condition called microcephi, which is a rare genetic condition that affects the heart and is caused by the fusion of a genetic material called the X chromosome.
The condition causes the child to have small heart defects called dilated cardiomyopathy.
The boy’s parents had been advised that microcephela was a genetic condition but the family were not aware of it until it was revealed on Wednesday.
The parents and two other members of the family, who are both members of Queensland’s Royal College of Obstetricians and Gynaecologists, are also charged with neglecting a child and making false statements.
The Royal College said the baby was admitted to hospital in December after his parents noticed he was having a heartbeat.
His heart rate increased after two days, but he was then discharged.
His mother told the ABC the doctors told her the baby had microcephalus, but she had no idea what it was until she was contacted by the ABC.
The nurse who provided the care and cared for him told the Brisbane mother she had a cardiac arrest on January 18.
“They were in disbelief, but when I told them it was a heart attack, they said that it was fine, but it was still heart-related,” she said.
She said she had to stay at home with the baby for two days to allow the heart to be treated.
“It was devastating because he had no pulse, and he was so weak,” she told the Australian Broadcasting Corporation.
“I knew he was in a very, very critical state.”
The ABC has spoken to the mother who is now in a critical condition.
She told the broadcaster the boy had a heart murmur, which can occur in the absence of a pulse, so she was taken to a Brisbane hospital.
Her son was taken by ambulance to hospital with severe heart problems, and died on February 10.
The ABC understands the boy’s father and other members the family had been aware of microcePHA but did not know it existed until it became apparent on Wednesday night.
“There was nothing they could do,” the mother told ABC News.
It was treated as a heart problem and then it went to the emergency department and they were like, ‘oh, we have a heart patient’.””
But it was not really treated.
It was treated as a heart problem and then it went to the emergency department and they were like, ‘oh, we have a heart patient’.”
The hospital staff were very upset.
They were like ‘you don’t have to worry about him, he’s fine, it’s just a heart issue’.
“It was the worst feeling in my life.”
The parents of the baby were taken to hospital by ambulance, but were not told they had a microcephilic heart condition.
Ms DiManno told the Queensland Health Department’s Central Queensland Operations unit on Wednesday that she and her partner were not expecting the baby to have microcephis.
“The baby is fine and he is doing well,” she was quoted as saying.
“We’ve just been through what we’re going through and we can’t understand why they have to tell us we have this.”
Ms DiDanno’s partner was treated at the Royal Children’s Hospital in Brisbane for the condition.
The Queensland Health department’s Central Brisbane Operations unit said the staff at the hospital were unaware of microCEPHA.
“Unfortunately, this was not reported to us,” a spokeswoman said.
The woman’s partner is due to be discharged on Monday.
Ms Trish O’Connor said she and the other woman had been planning to meet the baby’s parents for the first time in more than two weeks when the heart attack occurred.
“If we’re all going to come together and celebrate, then it’s only right we’re together,” she is quoted as telling the ABC on Wednesday morning.
“To be honest, we’re a bit embarrassed by it.”
A spokeswoman for the Queensland Department of Health said the department was aware of the ABC’s investigation and the mother and child’s families were contacted by staff from the Central Queensland Operation Unit.
The spokeswoman said the mother was discharged on Thursday, and the child is now being cared for at a Queensland hospital.
A statement from the Queensland department of health said the case of the Queensland mother and her daughter was under investigation.
“As part of our ongoing investigation into these incidents, the Queensland Minister of Health is aware of